Today, Jillian started her second year of preschool and Mark began the fall term of his program Early Achievements Program at Kennedy Krieger. Despite verbally prepping everyone a day ahead of time, we were still unable to get “the shot”, but these captured the moment š You ask her name and she will proudly …
Our First Day of School – 2nd Year of Pre-K & KKI Fall Program Read More »
Happy 10 Years! The divorce rate among couples who have a child with special needsĀ is disturbingly higher than the general population. Ā And I totally get it. This life is stressful. I once read that mothers who have a child with autism have stress levels comparable to combat soldiers. Ā I feel a tremendous amount of pressure …
Perhaps victory is a bit of a strong word to use for this scenario, but none the less. The same day we found out that Markās genetic results were back I received an Explanation of Benefits from Markās self insured plan that I obtained through the state. It indicated that Markās Kennedy Krieger program was …
Many people who read my previous blog post were surprised at how much I blamed myself for Markās autism, and while Ike may not share the same level of āmama guiltā, he can understand what causes me to feel such a deep sense of responsibility. We are constantly having appointments. I mean weekly. Our challenge …
We have been waiting for several months for the results of our genetic testing, and our big appointment is on September 8th, the appointment where we find out if the geneticists at Kennedy Krieger found anything from theĀ Whole Exome SequenceĀ . Yet out of the blue I received a phone call this morning from Sonal, our …
Ever since our family took a strange turn down the autism road, I’ve been writing Ā blog posts in my head. I wanted to find a meaningful, personally therapeutic way of sharing our unfolding story with friends, family and anyone interested in following along as we fumble through our sometimes dark, but often hopeful moments. I’ve …
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