Yesterday I woke up relieved that it was Friday. We had made it; we survived the first week of virtual learning, and then I realized that it was Thursday, and we still had two more days of this torture. I, like many other parents of students with IEPs, have watched our children struggle in frustration …
For me, the weekend away was not about the ability to sleep longer if I wanted, or to have an extra scone or a homemade pop-tart the size of my face, though I did, it was about finding exactly what I needed, which was clarity and peace.
Respite wasn’t what I thought it would be. It was much more. It allowed me to see that self-care isn’t about finding strategies to escape the present reality, it’s developing ways to improve the current conditions by establishing healthy boundaries and making choices with the intention of well being.
And so with that, I’ve given myself permission to say no, to step back and to regroup. I am forever grateful to the ladies that shared this sacred weekend with me, for Andrea’s vision brought to life, and for the ripple effect that her generosity of spirit, time, and money will go for years to come.
And then one night toward the end of the trip, we decided to build a fire on the beach. We took all the chairs, supplies, and the kids, and trudged across the dunes to our spot. We fully anticipated that one of us would need to be on guard with Mark ready to sprint. And once again, he surprised us. He sunk down into a beach chair, buried his feet, and relaxed as he listened to music and the ocean waves. Not once did he bolt or panic. I kept tearing up as I looked at each of my family’s faces and took pictures, trying to savor and cement this moment forever. I needed to relish in the fact that I wasn’t yearning for anything more. I wasn’t sad that Mark wasn’t interacting with us in a typical way, or that he didn’t care about seashells or ghost crabs. No, I was blissfully enjoying the gentle-spirited boy who God created, rather than the neurotypical boy that I used to wish for in his place.
I think that we could learn a lot from our friends with autism and what works for them. I think we may find that we don’t cope much differently and can respond to the same steps used to address the anxiousness that we are feeling as we begin to transition back into a world filled with Plexiglass shields, mask requirements and one way directional flows.
On Thursday night I flopped into bed after one of those days that just didn’t start well. We had overslept, scrambled, took showers throughout the morning between meetings, the luxury of working from home I suppose. It was just one of those days, and we could all feel it, especially Mark. As I laid in bed, …
The message our family has been receiving from all directions has been, try to keep up with the work but remember to take a walk, enjoy the sunshine, and take care of yourself. This feels like someone telling a soldier in the middle of combat to take a breather and grab a coffee, while bombs are dropping around them.
No, no amount of usual prescriptive self-care is going to unravel the significant amount of turmoil and stress that we are all experiencing.
Why aren’t we talking about mental health? Why aren’t we acknowledging it’s significance and importance? Why is it an afterthought?
There is no place for comparative suffering amidst this pandemic. I’d venture to say we are all experiencing waves of panic, grief, uncertainty, and unease. No one is guaranteed their job, food, toilet paper, their comfort or their loved ones. And feeling those feelings is natural and thankfully bonds us together in this chaos. We may be socially distancing but we can experience closeness knowing we are not alone.
A couple of weeks ago, sitting at my computer, going through my long list of Christmas to-dos, I felt a knot in my throat and a nagging feeling that something wasn’t right. I blew it off as feeling a little blue that I was by myself after spending the previous evening out with Ike, celebrating …
To the Under Appreciated Special Educator: You have a really hard job. Harder than most people realize or understand. 50% of your special education colleagues will leave before their fifth year of teaching. Your job is not a job, it’s a calling. One that results in high turnover and burnout. This job is not for …