autism

Respite & Reeling it In

For me, the weekend away was not about the ability to sleep longer if I wanted, or to have an extra scone or a homemade pop-tart the size of my face, though I did, it was about finding exactly what I needed, which was clarity and peace.

Respite wasn’t what I thought it would be. It was much more. It allowed me to see that self-care isn’t about finding strategies to escape the present reality, it’s developing ways to improve the current conditions by establishing healthy boundaries and making choices with the intention of well being.

And so with that, I’ve given myself permission to say no, to step back and to regroup. I am forever grateful to the ladies that shared this sacred weekend with me, for Andrea’s vision brought to life, and for the ripple effect that her generosity of spirit, time, and money will go for years to come.

Peeling Back the Layers

There is no place for comparative suffering amidst this pandemic. I’d venture to say we are all experiencing waves of panic, grief, uncertainty, and unease. No one is guaranteed their job, food, toilet paper, their comfort or their loved ones. And feeling those feelings is natural and thankfully bonds us together in this chaos. We may be socially distancing but we can experience closeness knowing we are not alone.

Home

A few weeks ago I stood with my hands gripping either side of my kitchen island as I sobbed. One of those ugly cries where your mouth hangs open without sound as your body shakes. It was 7pm on a week night and my family was scattered throughout the house going about their comfortable nightly …

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We Pretend

I did what a lot of people did this week. I shared our highlight reel on Facebook. The smiling photos of each of my children enjoying Christmas but in reality we are happy to be moving on and away from a holiday whose traditions punctuate the masterful act of pretending that we find ourselves performing …

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Be Gentle

A few weeks ago I received a paper in Mark’s preschool folder with two of the most anxiety provoking words for a special needs parent, field trip. Mark’s class would be visiting the theater on campus where I work for a kinder concert. I couldn’t imagine sending him anywhere outside of his routine without one …

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Hard Things

The night before I went into labor with our third baby, I was feeling restless and wrote a draft blog post about facing challenges and doing things previously thought impossible. If someone had told me years ago that I would have a child with special needs and a rare genetic disorder with no cure, and …

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